The American Liver Foundation Advocacy
The American Liver Foundation is a not for profit organization that serves as a trusted voice for individuals living with liver disease. Its mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure for liver disease.
The American Liver Foundation takes a leadership role in advocating on behalf of the millions of Americans living with liver disease and their families.
- American Liver Foundation testifies before Congress and state legislatures on important issues related to liver disease to help effect change in public health policy.
- We actively lobby Congress and state legislatures for legislation to support increases in organ donations.
- We have been a moving force behind the acceptance of an agreement on a comprehensive “Research Agenda” for liver disease.
- The Foundation’s “Annual Day on the Hill” engages staff and volunteers in a full day of lobbying for legislation on critical issues including increased funding for research, public health education and organ donor awareness.
- The Foundation participates in numerous coalitions and works in partnership with other organizations to support public policy and funding into research, education and advocacy for liver disease and wellness initiatives.
- American Liver Foundation has been active in obtaining cosponsors for the Liver Research Enhancement Act (HR1743) to create a center within the National Institutes for Health that will focus solely on research into liver-related diseases.
In total, over 30 million Americans have some form of liver disease. Over 5.5 million people are living with chronic liver disease or cirrhosis, and approximately 20-30% of adults and 3-10% of children have non-alcoholic fatty liver disease (NAFLD), which can lead to a more serious liver disease called non-alcoholic steatohepatitis (NASH). Unnervingly, approximately 4.4 million Americans are living with Hepatitis B or C and many of these individuals do not know they are infected. With the prevalence of liver disease in the U.S. alarmingly increasing, we need to work together to take action now!
1/10/2017 - Oppose the repeal of the Affordable Care Act without Congress implementing replacement legistlation to ensure affordable health care coverage.
is currently debating significant changes to the healthcare system, including
modifications that will impact private insurance expenses and accessibility.
This debate has the potential to create many negative outcomes for individuals
and families affected by chronic or costly medical conditions. If federal
patient protections are ultimately removed or weakened, then many patients
could be exposed to increased costs, medical bankruptcy, and lack of access to
needed care or therapies. Lawmakers
need to understand that the following “four pillars” are absolutely essential
to patients and their families, and must be included in any relevant proposals
- Pillar 1: Prohibit pre-existing
condition discrimination. Individuals
must be able to equitably access comprehensive healthcare coverage regardless
of their health status, diagnosis, and related factors.
- Pillar 2: Prohibit lifetime and
annual caps on insurance benefits. Any
individual that purchases healthcare coverage must not be able to outspend that
coverage and expose themselves to additional, unaffordable fees.
- Pillar 3: Allow children to stay
on family coverage until they are 26. Families
with affected members face unique and serious financial challenges and
prolonged stability is essential.
- Pillar 4: Limit out-of-pocket
costs for patients. Enacting
and preserving no- nonsense restrictions that cap out-of-pocket costs is the
best way to keep coverage equitable and accessible to all.
of Congress need to understand that their constituents expect them to maintain
and strengthen patient protections in the healthcare system. The best way to
educate your two Senators and your House Representative about your needs and
earn their support for patient protections is to connect with their offices and
make your voice heard.
Click here to send a message to your members of Congress!