Why I walk and Why the name Tony's Ribs-a-Flappin ?
I'm on a personal mission to help the American Liver Foundation in the fight against liver disease and I need your help.
Let me tell you why I Walk for Fun....Walk for Life.....And why the silly name "Tony's Ribs -a- Flappin"
WHY I WALK
There are 30 million people affected by liver disease in the United States and unfortunately my father Tony Jerome was one of them. There are many misconceptions that go along with liver disease, as is it not simply an "alcoholic's disease". Liver disease affects men, woman and children alike and strikes across all cultural and ethnic barriers. One out of every 10 Americans is affected by the 100 types of liver disease. In my father's case there seems to be a hereditary component to it and years of testing have yet to come up with a cause.
When my father was only 19, he watched as his mother passed away at the age of 58 from complications of liver disease - complications he would later personally experience. Several years after his mother passed, he watched as his brother succumbed to complications of liver disease as well. For years my father had hoped the same fate would not become of him but in 2002, at the age of 52, he too was diagnosed with liver disease and battled the side effects and complications that go along with a failing liver ever since.
For the last 6 years of his life, my father was closely monitored by the Liver Transplant Team at Mount Sinai Hospital in Manhattan who I cannot say enough good things about. They tended to his every need and were truly professional experts in their field. They had solutions for just about everything, but as my father's liver began to deteriorate at a more rapid rate and they started running out of treatment options, the idea of a "live donor" came into play before he "ran out of time". A family member had graciously volunteered to be a live donor but her brave offer came too late. Unfortunately his liver disease progressed at a very rapid rate and one by one, his organ started to fail. On January 14, 2010, he passed away with his family by his side from complications of liver disease. While it is too late to help my father, it is not too late to help the millions of others affected with this ugly disease.
Three years ago I decided to make it my personal mission to raise money for research and a cure for liver disease. On May 4th, I will be taking part in the American Liver Foundation's Liver Life Walk. I will proudly walk this year and for as many years as I still have the ability to walk in an attempt to raise money for research, new drugs, new treatment techniques and hopefully a cure for all those that will have to battle liver disease in their lifetime.
I am asking for your help in this worthy cause. By making a donation you'll take me one step closer to my goal and take all of us another stride closer to a world free of liver disease. Donating is easy! Just click the blue "Click Here to Sponsor Me" button to get started. If you personally want to walk, you can register to be a walker for the team and begin raising funds of your own towards the team goal and a cure.
SO WHY THE SILLY NAME- "Tony's Ribs - a - Flappin" ?
For those of you who knew my father personally and for those who did not, I can tell you first hand that my father had a knack for calling people, places and things by the wrong name. Perhaps it was intentional or perhaps it was to make those around him smile and laugh. He will always be known for this silliness. He had been known to refer to Bon Jovi as "Pongy Bongi", his blackberry was known to the family as his "BLUEberry", his laptop he calls his "lapping top". When he thought I was too thin he told me I looked "emancipated" instead of emaciated, and various family members now have been renamed random things because my father continuously gets all their names mixed up.
With the passage of time, my father was quirky until the very end. One medication he was taking to help manage some of the mental side effects of liver disease is called Rifaxamin. My father took multiple medications to alleviate the many symptoms that accompany a failing liver. He hated "pill time" and he wanted to know what each medication was called and what it was for to ensure you were not slipping him so much as one extra pill that he had to swallow. One day, going down the list of pills, like we did every morning, afternoon and night, he looked up at me and said "What is that one.....my Ribsaflappin?" My mother and I busted out hysterical laughing. He of course meant his Rifaxamin, but he either couldn't pronounce it properly or could not remember its real name. We corrected him several times but three times a day my father asks which pills were the "Ribsaflappin". (Ribs a Flappin)
In an attempt to honor this quirky side of him and to be unique and have a name that people would hopefully remember when they are considering the team to donate to, I have decided to raise funds for Tony Jerome and the millions of others with liver disease for Team: Tony's Ribs- a- Flappin. I hope that you will join me by deciding to either walk for the team or donating to those taking Ribs-a-Flappin for life.
It's quick and easy to make a tax-deductible contribution to this wonderful cause. Just click the blue "Click Here to Sponsor Me" button towards the top of the page to get started and make an on-line donation.
Together we can make a HUGE difference.
On behalf of the 30 million American affected by liver disease, including my father, I thank you in advance for your support as I "walk for fun...walk for life"!
Event Schedule: Registration 9:00am, Walk 10am
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