Join us to Walk the liverwalk on April 27, 2013
Jaydon Sebastian Medina was born on October 5, 2012. God had blessed our family with a most precious gift. Jaydon looked healthy, ate like he should and would sleep like any other baby, he was a bit of jaundice on day two but not an unusual problem for babies and under the bili lights it had gone down.
Jaydon seemed healthy and perfect, but the jaundice reappeared a little before he reached two months old. Little did we know our little Jaydon was already fighting a life threatening liver disease. Admitted to Texas Childrens Hospital on December 7, 2012 was just the beggining for what our little guy will have to battle for the rest of his life. On December 8, 2012 blood work revealed that Jaydon?s jaundice was a more dangerous kind of jaundice than the normal ?baby? variety and was diagnosed with Biliary Atresia. There is no cure for Biliary Atresia and the cause in why he has it is unknown. Doctors recommended a Kasai procedure surgery to try to get the bile to flow from his liver to his stomach. With biliary atresia the bile ducts in the liver and biliary system become covered with scar tissue and cannot drain the bile. Without the help of the Kasai surgery or a liver transplant, the estimated life span for a baby is less than two years.
On December 11, 2012, our little baby boy, who weighed 11 pounds and 5 oz, endured an 8 hour surgery. It was the most agonizing day. We prayed, we cried, and just sat in the waiting room hoping our baby would be ok. At about 3 pm that afternoon our prayers were answered and Jaydon was out of surgery but him being so tiny and enduring such a major surgery was just heartbreaking to us but we were ecstatic to be by his side once again. After being monitered closely by the nurses and doctors at Texas Childrens Hospital, we were happy to hear that we could bring our baby boy back to our home December 19, 2012. We were told over and over by the doctors at Texas Childrens that the Kasai would only be a ?temporary? fix and at some point if the Kasai failed, Jaydon would most likely need a liver transplant. Some Kasai procedures work for years; some only for months, since the surgery, Jaydon has improved so well and his jaundiced has gone down tremendeously.
On February 6, 2013 we were pleased to find out that the Kasai procedure worked for baby Jaydon. Although a Kasai is a temporary fix and can fail at any moment, we are in hope for the best and know our baby boy will lead a close to normal and perfect life while battling liver disease. We do this walk in support of one day finding a cure for Biliary Atresia.
you can read more about Biliary Atresia by following this link.
Thank you for your interest in supporting our Liver Life Walk team! Lets find a cure for Biliary Atresia and many other Liver Disease!
To make a donation to our team, locate a team member from the list below and click her or her name to visit their Personal Fundraising Webpage. Once there, select the "Sponsor Me" button and follow the instructions to make a donation.
To join our team, select the "Join Team" link at the top of the list of team members. Then follow the instructions to register for the event as part of our Liver Life Walk team!