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Team Hagan Rides Again!

Team Hagan 2013
Team Hagan 2013

Support Marcia! Join Marcia's Team!
Team Hagan team page
Achievements
TeamRaiser Achievement Badge
Gold Medal
Raised $1000 for the Liver Life Walk
My Progress
Goal:
$2,000.00
Achieved:
$1,375.00
69 percent of goal achieved.
Fundraising Honor Roll

In the words of the great Ronnie Santo:  This could be the year!  

It has been an exciting year in the world of Hepatitis C. Sounds weird, doesn't it?  But it's true.  

A few years ago (2011-ish), I mentioned that in 2014 a new treatment should be approved for Hep C.  Well that time has come!  At the time 2014 sounded so far away! But here we are, in February Jeff started a new therapy aimed at eradicating the hepatitis from his system. We've been down this road before, so we entered the trial with some unease. As many of you know Jeff has undergone therapy for the Hep C on four previous occasions. The therapy in the past was brutal.  The medications designed to fight the Hep C were poisons aimed at tricking the body into kicking an immunorespons into overdrive in an attempt to fight off the virus, like getting the flu or a cold. Imagine having the flu for days, weeks or months on end. His last round actually lasted a year.  Poor fella'!  So when his new team at the University of Chicago told us the new therapy was finally becoming available we were excited- YEA, however they mentioned this new therapy was to be given in combination with some of the same medicines that were part of the old therapy-BOO!

It took some research on our part, and some serious discussions with his new doctor (who is aggressive -I love it!) to determine exactly what medications we thought Jeff could tolerate. It turns out we were able to limit Jeff's exposure to some of the harsher meds and settle on a therapy with the new medications combined with some of the milder old meds.  Well, guess what? ...it's working!!!   Jeff started this new therapy in February and by March his test results showed no detectable levels of the Hep C virus. At three months he was still clear. With two months to go we are beyond optimistic. The side effects have been much more tolerable than previous treatments. Jeff has had headaches most days, and he is tired, as the therapy is starting to wear him down. But he is nothing like he was in the past.   Another YEA! 

The doctors and nurses are as excited as we are. They are seeing great results in all their patients with this new medication. It's called Solvaldi, this new medication is just becoming available, but at great cost, it's crazy!  I'll spare you the details, but if you look it up you'll see that this is one darn tootin' expensive therapy. We've managed with the help of insurance, family and some charitable organizations who are making great efforts to bring this treatment to everyone who needs it including us.  But more help is needed on so many levels in the fight against Hep C. More research is needed to find ways to improve these treatments and make them more affordable and tolerable. More help is needed to make sure no one is denied this life saving treatment because they can't afford it. There are many advantages to funding research.  Maybe we can find a vaccine?  Maybe other patients won't have to suffer like Jeff, when it was treating him in a very "let's try this" fashion because the knowledge and lack of funds for research wasn't there.  Maybe we can minimize the side effects and duration of the treatment.  Maybe we can eradicate this lethal virus once and for all like polio and Hep B for that matter.  This is why we walk and raise money. This is why we have been walking since 2007. This is why we ask for your help.  Please take the time to donate what ever you can manage to our team.  No amount is too small... every little bit helps.  The way I look at it is if it weren't for all of you who joined us in the past financially with fundraising for research, Jeff would be in a much different situation.  So, thank you and take a minute to congratulate yourself for helping in this wonderful cause for Jeff and around the world!  This was all done because of you!  Well done and a great big thank you from the bottom of my, Jeff and Xavi's heart!  

Please take the time to look at the information on our team page. Follow the links for the American Liver Foundation to see the great work they do in pursuit of the goal of improving research and education in all areas of liver disease. Read the success stories and sadly the tragedies of people from all walks of life and at all ages who have been fighting liver disease.  It will inspire you! 

Thank you again for your continued support. Join us if you can at Montrose Harbor this Saturday. It's always a great time! 

Love, hugs and kisses, 

JMX-H

Thank you for supporting the Liver Life Walk Chicago on June 14, 2014!

The Liver Life Walk is a celebration of my commitment to a world free of liver disease. Please help me make that goal a reality! I support the American Liver Foundation® because it:

  • Advocates on behalf of 30 million Americans with liver disease on the federal, state, and local levels.
  • Provides education programs, support services, and outreach activities that reach more than 200,000 individuals annually and raise awareness on liver disease prevention and management.
  • Is the largest non-governmental supporter of liver disease research in the U.S. and since 1979, the American Liver Foundation Research Awards Program has provided more than $24 million to more than 750 qualified scientists and physicians.
Please send offline, non-cash donations to our office at:
American Liver Foundation® | 39 Broadway | Suite 2700 | New York | NY | 10006
*Please be sure to include the Walk Participant's name with your check.
All registration fees and donations for this event are nonrefundable.

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