|Mount Sinai /RMTI team page|
Raised $1000 for the Liver Life Walk
Fundraising Honor Roll
Dr. Rebecca Twersky
Dr. Jeffrey M Birnbaum
Una M. Savage
Dr. Jack DeHovitz
Ms. Margaret Briggs
Diann, Othneil and Myles Johnson
Jason Okin CO
Mrs. Raquel D DeGale
Little Byrdies, LLC
Thank you for taking time to visit our page.
Please help myself, my son Aiden who is now 3 years old, a 2 time liver transplant recipient, his dad and his brother spread the word about the Liver Life Walk on June 8, 2014. When I walked last year, my son was undergoing the evaluation process to be placed on the waiting list for a liver. Now this year, I am happy to say that post transplant he will also be walking as well in support of this very important cause.
Our son Aiden was born on 3/6/2011 in the morning at New York Methodist. By that night and into the next morning the pediatrician and myself knew that something was off with Aiden. At first he was thought to have jaundice and was placed under the heat lamps but his condition continued to detriorate. The next step was to run a series of blood tests. The results revealed that Aiden had an ammonia level of 700. At this point, it was decided that Aiden had to be moved immediately for treatment at Mount Sinai; one of the few hospitals known for treating metabolic disorders. He was transferred to Mount Sinai on March 8th.
After undergoing a battery of tests at Mount Sinai, Aiden was diagnosed with having a rare metabolic disorder called Ornithine Transcarbamylase (OTC) Deficiency. Simply put, his liver was missing a very important enzyme which is needed to help his body process ammonia which is the by-product of protein. If this ammonia is not removed from the body, it will build up in the body and can cause coma or death.
After trying for 2 years to manage the disorder with medicines and a strict protein diet (plant-based only) with the awesome Metabolic Team at Mount Sinai; we had to make the decision to place him on the Liver Transplant list through Mount Sinai as a new liver was needed. Up until Aiden received his liver transplant, life for him was very unpredictable. Even with the medicines and being watched closely by the Metabolic Team, his ammonia would spike at any given moment due to a cold/virus, fever or teething issues. By the time he had his first transplant he had about 10 hospital stays due to ammonia spikes not counting the ER visits and the frequent clinic visits. As the hospital stays started to become more frequent, it became obvious to us that we had to take this next step.
Aiden underwent his 1st liver transplant on 6/5/13 but due to complications, he had to have a 2nd one on 9/1/13 at Mount Sinai Hospital. After spending about 4 months in the ICU between the two surgeries, I am happy to report that my son is healthy and doing really well post 2nd transplant. Aiden now continues to be followed up by the very dedicated Transplant Team at Mount Sinai. He is also receiving physical therapy, occupational therapy and speech/feeding therapy at home. Starting Fall of 2014, Aiden will be able to attend school for the first time. (YEAH). Due to his illness we have had to keep him home for the past 3 years where he also receives special instruction (school services). God is good.
This transplant gave Aiden a second chance at a better life... When he was born the prognosis for him was not good but looking at him today you will never know. Our family is grateful for this second chance with Aiden, our miracle baby, and to the donor families.
Unfortunately, our situation is not uncommon, as there are a lot of families out there with similar stories to ours. So every step I take and every dollar I raise will make a difference in the lives of the 30 million Americans living with liver disease. By making a donation on my behalf, you will be helping the American Liver Foundation provide community-based education and prevention programs, protect the rights of people with liver disease, and fund critical research.
By passing this link along, registering for the walk (you can join our team or create your own) or making a donation you'll take us one step closer to our goal and take all of us another stride closer to a world free of liver disease!
If you chose to donate, just click the "DONATE" button below the picture of Team Aiden to help us raise donations for this important cause.
For those of you who are interested in walking with us, it is not too late to register. The more people who register in advance the more we can plan for Walk Day to ensure there is enough food, tee-shirts and fun for everyone!
To register for the walk, just click the "REGISTER" button under the picture of Team Aiden and follow the onscreen directions. Please register under the Team Name: Mount Sinai /RMTI
Thank you for your support in advance!
#TeamAiden #Blessings @DonateLife
Thank you for supporting the Liver Life Walk New York City on June 8, 2014!
The Liver Life Walk is a celebration of my commitment to a world free of liver disease. Please help me make that goal a reality! I support the American Liver Foundation® because it:
|Please send offline, non-cash donations to our office at:
American Liver Foundation® | 39 Broadway | Suite 2700 | New York | NY | 10006
*Please be sure to include the Walk Participant's name with your check.
All registration fees and donations for this event are nonrefundable.
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