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Welcome to My Liver Life Walk Page!


Support Lorna!
Lorna's Team team page
Achievements
TeamRaiser Achievement Badge
Gold Medal
Raised $1000 for the Liver Life Walk
My Progress
Goal:
$1,500.00
Achieved:
$1,750.00
117 percent of goal achieved.
Fundraising Honor Roll

As a participant in the Liver Life Walk, I'm helping to move forward the fight against liver disease and I need your help!

Every step I take and every dollar I raise will make a difference in the lives of the 30 million Americans living with liver disease. By making a donation on my behalf, you will be helping the American Liver Foundation provide community-based education and prevention programs, protect the rights of people with liver disease, and fund critical research.

By making a donation you'll take me one step closer to my goal and take all of us another stride closer to a world free of liver disease!

 

This year, we are walking for Isaac who has been involved with the LLW for 2 years and he is the National Liver Life Walk Ambassador for 2014.  Here is Isaac’s story. 

My name is Marisela and I am the mother of three wonderful boys ages 13, 10 and 7. My middle son Isaac has always been my active child. He loves sports, football, swimming, and any activity where he is able to run. He was very active in youth soccer competing in many tournaments and he loved every minute of it.

April 17, 2011 is when we noticed our son’s eyes looking slightly yellow. We immediately knew something was not right, so we contacted his pediatrician and after that initial visit we all thought it was probably a case of hepatitis. The very next day I received the call stating I should take Isaac to Phoenix Children’s Hospital. That’s where we stayed for a week until Dr. Milho came to us stating that his lab results were not getting any better and that University of Arizona Medical Center in Tucson is the best place for him at this time. When they told me that they were flying my son to another hospital for more options on his care, I truly thought to myself, "This is a little extreme for us and just watch he will be better in a week or less and all of this was done for nothing".

The information about our son's liver transplant came a little bit at a time, and we have to say that we were not prepared for it. Dr. Khan and Dr. Jie explained to us that we might need to do a transplant. Not wanting to realize that this was really happening to our family, we held on to the "might need" and decided that our son wasn't going to need a transplant and the worst thing we would ever have to deal with was just a few weeks in the hospital! Not one other member of our family has ever gotten a transplant so how could our son need one! He is only 8 years old! How did this happen? How did he get this virus? Where did it come from? Why was this happening to us and to him? A million questions and why's were pouring out of us and my entire family! Our hearts were breaking.

Due to an unknown virus that attacked his liver and caused complete liver failure he was in need of a transplant. The Doctors stated they may never know what caused liver failure, as there are so many unknown viruses. When he began to get worse, we realized a liver transplant was our only hope. The waiting gets stressful when your child starts getting sick, you start feeling anxious and wondering when this life saving operation is going to happen and if it’s going to happen in time. Isaac was showing signs of brain swelling, his speech was slurred, his coordination was diminishing and then every few minutes he started to scream uncontrollably, to my horror I saw my little boy's body starting to twitch during seizures. At that time the Doctors informed us that we are in a dangerous place and this is not where we wanted to be or what they wanted to do but they had to place him in a medically induced coma.

At that time we found out our sons name was moved up to number one on the transplant list for the Southwest region.  What to us felt like a life time was actually a little over a day before we were notified of a matching donor! With joy in our hearts for our family and hope for our son we also had tremendous sadness for the loss of another family’s precious child. This is the kind of emotion that anyone would struggle with. Isaac Transplant took place on May 8, 2011 (Mother’s Day.)

The Doctors, Nurses, Liver coordinators and everyone who took part in my son’s very successful liver transplant could not have given me a better gift! 14 days after his transplant Isaac was released from the hospital. The treatment we received and the love that was shown from our doctors and staff has touched me deep down to my soul, it is something my family and I will never forget. Isaac has so much life left in him and he is truly blessed to be a liver transplant recipient.

To join Isaac, his family and many others just like them register for the Liver Life Walk today!

 

Donating is easy! Just click the "Donate" button to get started!

Thank you for supporting the Liver Life Walk Phoenix on April 12, 2014!

The Liver Life Walk is a celebration of my commitment to a world free of liver disease. Please help me make that goal a reality! I support the American Liver Foundation® because it:

  • Advocates on behalf of 30 million Americans with liver disease on the federal, state, and local levels.
  • Provides education programs, support services, and outreach activities that reach more than 200,000 individuals annually and raise awareness on liver disease prevention and management.
  • Is the largest non-governmental supporter of liver disease research in the U.S. and since 1979, the American Liver Foundation Research Awards Program has provided more than $24 million to more than 750 qualified scientists and physicians.
Please send offline, non-cash donations to our office at:
American Liver Foundation® | 39 Broadway | Suite 2700 | New York | NY | 10006
*Please be sure to include the Walk Participant's name with your check.
All registration fees and donations for this event are nonrefundable.

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