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Liver Life Walk Long Island 2014

Team Alexandra

Welcome to our Liver Life Walk Team Page!

Thanks to everyone's generosity we have raised $5,420 to date.  Thank you so much for all of your love and support! We appreciate it more than you know!

Our Story:

August 2013 was the most challenging time in our lives.  Our daughter, Alexandra was diagnosed with PFIC at 2 years old.  She had been itchy from 2 months old.  We went to Gastroenterologists, Allergists, Immunologists, Metabolic Disorders Doctors, Neurologist, and Dermatologists.  Alexandra underwent many different types of tests and a tremendous amount of bloodwork.  Not one doctor could figure it out.  After about a year of this, Alexandra's itching subsided.  Then in March 2013 it came back with vengeance! We decided to start the process with all the doctors again.  We arrived at the Dermatologist, who prescribed her Doxepin to help relieve the itchiness enough to allow her to sleep.  Doxepin caused Alexandra to turn jaundice. The jaundice caused the Gastroenterologist to do two sonograms and bloodwork.  Her bilirubin reached a 22.  We were sent to Mount Sinai's Pediatric Liver Center and here we met Dr. Chu.  Dr. Chu is a godsend.  Thanks to Dr. Chu and her staff, we are happy to say that Alexandra's levels are back to normal.  Although she is still itchy, her liver is functioning and that is all we can ask for.

 

Thank you for your interest in supporting our Liver Life Walk team!

To make a donation to our team, locate a team member from the list below and click her or her name to visit their Personal Fundraising Webpage. Once there, select the "Donate" button and follow the instructions to make a donation.

To join our team, select the "Join Team" link at the top of the list of team members. Then follow the instructions to register for the event as part of our Liver Life Walk team!

Team Alexandra Raised
Gold Medal Kristen Busby $3,345.00
Suzy Allen $50.00
Matthew Busby $160.00
Gold Medal Michael Busby $1,075.00
Delaney Crowe $0.00
Lorrie Crowe $50.00
Nicholas Crowe $0.00
Rosalie Crowe $0.00
Julia Ferraioli $100.00
Jeannine Florio $220.00
Keith and Sharon Kelskey $25.00
maryann Kelskey $20.00
John Locascio $60.00
Thomas & Diane Locascio $100.00
Toni Locascio $105.00
Phylis Mastro $0.00
Ann Marie McFeeley $0.00
Zoe Nangle $70.00
Katie Pienkos $25.00
Deborah Rosselli $30.00
Digna Salazar $200.00
Jake Shorr $20.00
Tracie Shorr $50.00
Diane Stoddard $0.00
muriel stoddard $100.00
Denotes a Team Captain